Open Directory - Health: Conditions and Diseases: Genetic Disorders: Fragile X Syndrome
See also: This category in other languages: - Personal story of a family living with Fragile X Syndrome. - A series of studies examining the impact of fragile X syndrome (FXS) on individuals, families and the agencies that serve them. - Creating a virtual research center in Israel to find a cure. - Non-profit organization run by parents. Fighting to find a cure for Fragile X Syndrome and helping Fragile X Family's. - Information on this disease, medical aspects, education, references, contacts and what's new in Australia - Aims to promote public awareness, to support scientific research and to provide a forum for families of children with this disorder to meet and share their ideas, concerns and problems. - Registered charity publishes a newsletter, invites applications for research grant, and explains how to donate or join. - Types, clinical signs, special properties of the Fragile X gene and genetic testing services available. - A mother tells of her son's condition, the information she was given at the time of his diagnosis and the importance of sensitivity in tailoring genetic information and services to clients’ culture, knowledge and language level. - One family's account of raising 3 children with Fragile X. - A community of families in and around the Washington-Baltimore metro area that have children affected by Fragile X Syndrome. Includes news, upcoming events, and resources. - Support group for Family's who are dealing with Fragile X Syndrome. - Information presented about Fragile X Syndrome, including the diagnoses and clinical manifestations. - Features information about the disease, its treatment, and inheritance.
